ARC-DS vVARY

The ARC-DS app is part of the Ambulatory Research in Cognition – Down Syndrome (ARC-DS) study, conducted by researchers at Washington University in St. Louis. This app is designed to support ongoing research into the cognitive health and daily experiences of individuals with Down syndrome.

Through ARC-DS by MetricWire, you can securely and conveniently take part in surveys and share valuable data that will help researchers better understand the relationship between cognitive functioning, everyday behavior, and overall well-being in people with Down syndrome.

Your experience with the ARC-DS app is tailored to you, guided by the study protocol developed by the research team using the MetricWire platform.

The app provides a user-friendly and secure way to manage your participation:
• Informed Consent: You’ll be provided with clear and comprehensive consent information before participating. You’ll always know what data is being collected, how it will be used, and who can access it. Participation is voluntary, and you can opt out at any time.
• Data Privacy and Control: All data is securely stored and protected. You retain control over your information and can choose to review, delete, or stop sharing your data whenever you wish.

The ARC-DS app supports important areas of research:
• Behavioral and Cognitive Health
Regular surveys help researchers track changes in thoughts, feelings, and behaviors, providing insights into how daily experiences may relate to cognitive health in individuals with Down syndrome.
• Sensor-Based Data Collection
With your permission, the app collects smartphone and sensor-based data to provide a fuller picture of activity patterns, routines, and environmental factors that may influence well-being.

By participating in the ARC-DS study, you’re contributing to meaningful research that seeks to improve the lives of individuals with Down syndrome through better understanding, support, and interventions.

ARC-DS by MetricWire makes participation easy, transparent, and impactful—empowering you to play a direct role in scientific discovery.